How Do You Know You’re One in a Million?

For Rare Disease Day 2015, we asked a simple question from our autoinflammatory community members. The responses were overwhelming, inspiring, and sometimes funny, but all truly show what it is like to live with a very rare disease.

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Be a Rare Disease Day & Autoinflammatory Disease Advocate!

Every year, the last day of February is Rare Disease Day. Most years, this day lands on February 28th, and in rare years like 2016, February 29th marks Rare Disease Day. We encourage everyone who is affected by a rare … Continue reading

Looking for a Community Service Project? Raise Awareness and Donations for Autoinflammatory Diseases!

Through the “How Hot Are You?” social media challenge, middle and high school students and college students can help raise awareness and money for periodic fever syndromes. About Autoinflammatory Diseases Autoinflammatory diseases, also known as periodic fever syndromes, are rare … Continue reading