“Perfect” Attendance Programs Stigmatize Kids with Chronic Illnesses

Many schools in many communities in the U.S. and around the world reward students who have perfect attendance. They may win a simple certificate during an assembly or much bigger prizes, such as a computer, bikes, trips to Disneyland, iPads, … Continue reading

Be a Rare Disease Day & Autoinflammatory Disease Advocate!

Every year, the last day of February is Rare Disease Day. Most years, this day lands on February 28th, and in rare years like 2016, February 29th marks Rare Disease Day. We encourage everyone who is affected by a rare … Continue reading