All I know is I have so much to tell you of the consequences of a lifetime without treatment.
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Having a chronically sick child means your world gets turned upside down and inside out. You no longer get to live the normal life you once had or imagined for your child and your family. Routines change, friends may change, … Continue reading →
Pain. Hurt. Fire. Needles. Burning. Knives. Those are the words used by children and adults who have a systemic autoinflammatory disease (SAID). From diseases with sporadic attacks of inflammation, such as PFAPA, to the more chronic and damaging autoinflammatory diseases … Continue reading →