Action & Advocacy

Suggestions, news, and updates about advocacy efforts, and ways to get involved to help with issues affecting patients with autoinflammatory diseases.

Here are some posts featuring a sampling of the advocacy work of our organization:

August 2013: Autoinflammatory Alliance Board Member Dorelia Rivera Met with Top U.S. Health Officials

October 2013: 2013 American College of Rheumatology (ACR) Annual Meeting in San Diego

February 2014: How the Autoinflammatory Alliance (formally the NOMID Alliance) was involved in Rare Disease Day 2014

March 2014: Awareness and Advocacy at the NYU Pediatric Rheumatology: An Update for Clinicians

If you want to get involved, there are many ways to help!  Here are a few, but feel free to be creative, and let us know what we can do to help you with your efforts. Thanks!


The Autoinflammatory Alliance is a 501(c)(3) non-profit organization dedicated to helping those with autoinflammatory diseases.

Donate now to help with awareness, education, and research for these rare diseases.