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Systemic Autoinflammatory Disease (SAID) Support

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Systemic Autoinflammatory Disease (SAID) Support
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Tag Archives: rare disease advocacy

Be a Rare Disease Day & Autoinflammatory Disease Advocate!

Posted on February 4, 2015 by Jennifer Tousseau, Karen Durrant RN co-authors

Every year, the last day of February is Rare Disease Day. Most years, this day lands on February 28th, and in rare years like 2016, February 29th marks Rare Disease Day. We encourage everyone who is affected by a rare … Continue reading →

Posted in Action & Advocacy | Tagged autoinflammatory, autoinflammatory nonprofit, nonprofit for caps, nonprofit for crmo, nonprofit for dada, nonprofit for dira, nonprofit for familial Mediterranean fever, nonprofit for fcas, nonprofit for fmf, nonprofit for hids, nonprofit for majeed, nonprofit for mws, nonprofit for nlrc4, nonprofit for nomid, nonprofit for pfapa, nonprofit for plaid, nonprofit for sapho, nonprofit for Schnitzler, nonprofit for still’s disease, nonprofit for sweet’s syndrome, Nonprofit for traps, periodic fever syndromes nonprofit, pfapa nonprofit, rare disease advocacy, rare disease day, rare disease research funding, raredisease, rarediseases
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Recent Posts

  • Multisystem Inflammatory Syndrome (MIS-C), COVID-19, and Autoinflammatory Diseases in Children
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  • TRAPS Life Without Proper Medication – My Story
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