How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?

Having a chronically sick child means your world gets turned upside down and inside out. You no longer get to live the normal life you once had or imagined for your child and your family. Routines change, friends may change, … Continue reading

The Pain of Autoinflammatory Diseases: Children and Adults Tell Us What a Flare Feels Like

 Pain. Hurt. Fire. Needles. Burning. Knives. Those are the words used by children and adults who have a systemic autoinflammatory disease (SAID). From diseases with sporadic attacks of inflammation, such as PFAPA, to the more chronic and damaging autoinflammatory diseases … Continue reading

Books to Help Kids Living with Chronic Illness

These books reviewed by families dealing with periodic fever syndromes, aka autoinflammatory diseases, come highly recommended to share with your child. We’ve included books that will help kids who themselves are living with a chronic illness, or who have a … Continue reading