Some medications use for SAID are FDA-approved. However, many are used “off-label” or are being prescribed as a part of clinical research. A reminder, this is for informational purposes only and does not constitute medical advice for any individual.
There are three forms of CAPS, familial cold autoinflammatory syndrome (FCAS), Muckle-Wells syndrome (MES), and neonatal-onset multisystem inflammatory disease (NOMID). FCAS is the mild form of CAPS, MWS is moderate, and NOMID is the most severe form of CAPS. Common … Continue reading →
For those newly diagnosed parents: I understand your reluctance to use any more medications than necessary, but let me give you some facts. When a child is newly diagnosed, there is a lot to process with the diagnosis, and a … Continue reading →
We’ve tried out both the ShotBlocker and the Buzzy Bee for shots. Both work surprisingly well at reducing the pain of an injection according to our 5-year-old. Most importantly, our 5-year-old asks us to use these when getting shots for … Continue reading →