↓

Systemic Autoinflammatory Disease (SAID) Support

Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

Systemic Autoinflammatory Disease (SAID) Support
Home Menu ↓
Skip to primary content
Skip to secondary content
  • Home
  • CAPS in 2021: Updates & Patient Experiences: Videos & Podcasts
  • Privacy Policy
  • Contact Us
  • Where to Start
  • Diagnostic Tools/Genetic Testing
  • Autoinflammatory Alliance
    • Our History
    • Editor Bios
    • New Name–Same Mission and Goals
      • What Does Our Logo Symbolize?
    • Privacy Policy
    • Disclaimer
  • Disease Specific Info
    • Hyper-Igd Syndrome
    • NLRC4-Associated Macrophage Activation Syndrome-Like Illness
    • Familial Mediterranean Fever
    • TRAPS
    • Cryopyrin-Associated Periodic Syndromes (CAPS)
    • CRMO
  • Videos
  • Action & Advocacy
    • Newsletters
  • Patient Resources
    • Symptom Logs
    • Tips and Resources for Patients (Adults and Children) on Biological Medications
    • Education
    • School Resources
    • Support Groups
    • Clinical Trials
    • NIH
    • Military Families
    • Other Resources
      • Blogs We Like
  • About Us
  • How You Can Help
  • Donate Now
Facebook: social networking Twitter This site's RSS feed

Tag Archives: raredisease

Be a Rare Disease Day & Autoinflammatory Disease Advocate!

Posted on February 4, 2015 by Jennifer Tousseau, Karen Durrant RN co-authors

Every year, the last day of February is Rare Disease Day. Most years, this day lands on February 28th, and in rare years like 2016, February 29th marks Rare Disease Day. We encourage everyone who is affected by a rare … Continue reading →

Posted in Action & Advocacy | Tagged autoinflammatory, autoinflammatory nonprofit, nonprofit for caps, nonprofit for crmo, nonprofit for dada, nonprofit for dira, nonprofit for familial Mediterranean fever, nonprofit for fcas, nonprofit for fmf, nonprofit for hids, nonprofit for majeed, nonprofit for mws, nonprofit for nlrc4, nonprofit for nomid, nonprofit for pfapa, nonprofit for plaid, nonprofit for sapho, nonprofit for Schnitzler, nonprofit for still’s disease, nonprofit for sweet’s syndrome, Nonprofit for traps, periodic fever syndromes nonprofit, pfapa nonprofit, rare disease advocacy, rare disease day, rare disease research funding, raredisease, rarediseases
Facebook: social networking Twitter This site's RSS feed
No images found!
Try some other hashtag or username

More Information

  • Action & Advocacy
  • FAQs
  • Finding a Diagnosis
  • How the Autoinflammatory Alliance Helps
  • Living with an Autoinflammatory Disease
  • Medications & Treatments
  • News
  • Patient Stories
  • Research
  • School/Work/Insurance Challenges

Most Popular Posts

  • What is the Most Accurate Way to Take a Temperature?
  • My Child, or I Keep Getting Fevers. What Do I Do?
  • What is a Periodic Fever Syndrome?
  • Mouth Ulcer Treatment and Prevention
  • Normal Body Temperature and the Periodic Fever Syndromes
Visit Autoinflammatory Alliance/SAID Support's profile on Pinterest.

Recent Posts

  • Multisystem Inflammatory Syndrome (MIS-C), COVID-19, and Autoinflammatory Diseases in Children
  • Autoinflammatory COVID-19 Resources for Information
  • TRAPS Life Without Proper Medication – My Story
  • How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?
  • Hope Lives
  • The Pain of Autoinflammatory Diseases: Children and Adults Tell Us What a Flare Feels Like
  • Autoinflammatory Patients Share How NIH Research Saves Lives
  • NIH Research Funding Benefits Everyone by Improving Health for All!
  • Books to Help Kids Living with Chronic Illness
  • Cryopyrin-associated Periodic Syndrome (CAPS) Treatment Guidelines – Studies and Other Resources

Tag Cloud

caps autoimmune sample 504 plan autoinflammatory Awareness month for still’s disease hids nonprofit best thermometers for kids symptoms of fever syndromes medicine cooler bags are forehead thermometers accurate hyperimmuoglobulinema D raphaela goldback-mansky nih traps autoimmune best thermometer for fever frequent fevers in child good ear thermometer Fundraising for sojia nih funding trends chronically ill children and school attendance uk Fundraising for fmf monthly fever colchicine for dogs sojia Fundraising for mws covid 19 giving tuesday autoinflammatory invisible illness

Main Pages

  • About Us
  • Action & Advocacy
    • Newsletters
  • Autoinflammatory Alliance
    • Disclaimer
    • Editor Bios
    • New Name–Same Mission and Goals
      • What Does Our Logo Symbolize?
    • Our History
    • Privacy Policy
  • CAPS in 2021: Updates & Patient Experiences: Videos & Podcasts
  • Contact Us
  • Diagnostic Tools/Genetic Testing
  • Disease Specific Info
    • CRMO
    • Cryopyrin-Associated Periodic Syndromes (CAPS)
    • Familial Mediterranean Fever
    • Hyper-Igd Syndrome
    • NLRC4-Associated Macrophage Activation Syndrome-Like Illness
    • TRAPS
  • Donate Now
  • How You Can Help
  • Patient Resources
    • Clinical Trials
    • Education
    • Military Families
    • NIH
    • Other Resources
      • Blogs We Like
    • School Resources
    • Support Groups
    • Symptom Logs
    • Tips and Resources for Patients (Adults and Children) on Biological Medications
  • Privacy Policy
  • Videos
  • Where to Start

Amazon Disclaimer

SAIDSupport.org is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com.
Privacy Policy
Medical Disclaimer
Contact Us
© 2013 - 2016 - SAID Support - All rights reserved. No part of this website may be copied or duplicated, in print or online, without written permission. SAID Support is produced and managed by the Autoinflammatory Alliance.
↑