Awareness and Advocacy Update–NYU Pediatric Rheumatology: An Update for Clinicians

Colleen Paduani, Autoinflammatory Alliance board member and Advocate, and her daughter, Quinn were in New York City increasing awareness about autoinflammatory diseases in March. Here is her report: We were pleased to be invited back to The 5th Annual Pediatric … Continue reading

Autoinflammatory Alliance Board Member Dorelia Rivera Met with Top U.S. Health Officials

In August 2013, Autoinflammatory Alliance board member Dorelia Rivera met with the U.S. Secretary of Health and Human Services Kathleen Sebelius, Dr. Francis Collins the Director of the National Institutes of Health (NIH), Ms Kathy Russell the CEO of the … Continue reading

Autoinflammatory Alliance’s Rare Disease Day 2014 Activities

How the Autoinflammatory Alliance (formally the NOMID Alliance) was  Involved in Rare Disease Day 2014: Rare Disease Legislative Associates (RDLA) had a number of events, including the RDLA Legislative Conference and Lobby Days in Washington DC.  Two of our NOMID … Continue reading