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Autoinflammatory COVID-19 Resources for Information

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….” International Society of Systemic Auto-Inflammatory Diseases (ISSAID) Recommendations for COVID-19 Key recommendations for the care of autoinflammatory patients: “3. At the moment for all patients with autoinflammatory diseases on medication, we recommend to continue all therapies as usual. 4. Don’t stop your medications including colchicine and biologics, without consulting your doctor. This may cause a flare of your autoinflammatory disease….

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How This Lightweight Folding Wheelchair Got This Rare Disease Family Traveling Again

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…n’t see joint pain. We found that with the wheelchair people were more kind and understanding. We are very happy that we finally broke down and bought the wheelchair. It has given us more freedom than we expected without being cumbersome and we’d highly recommend the Drive chair if you are looking for something lightweight and foldable….

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“Virtual 5K Your Way” Supporting the Autoinflammatory Alliance

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…hyperlinked references and links to other resources, materials and genetic testing labs. This project has used up most of all of our budgeted database funds, in addition to grants, and we need to raise more money so we can expand it’s features, and get the chart and this search site translated into other languages. More outreach to doctors, and support for patients will help more people with autoinflammatory diseases to get an earlier diagnosis, a…

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