Introducing Our Newest Addition:!

We are pleased to announce that our dynamic, autoinflammatory disease search database, based on our comparative chart is now ready for all to use at! This project has been highly anticipated, and we hope that everyone will find it … Continue reading

How This Lightweight Folding Wheelchair Got This Rare Disease Family Traveling Again

The following was written by Janine Vasquez, mom and wife to a variant CAPS (cryopyrin associated periodic syndromes) crew. Most parents look forward to the day their child no longer has to use a stroller or need a diaper bag … Continue reading

List of Cryopryin-associated Periodic Syndromes Research and Information

Cryopryin-associated periodic syndromes include familial cold autoinflammatory syndrome (FCAS), Muckle-Wells syndrome (MWS), and neonatal onset multisystem inflammatory disease (NOMID). Below are some links to studies and other informative resources on these fever syndromes. This is not an all-inclusive list. For … Continue reading