Singing in a Storm

The calm in our minds may just be the eye of a storm, but for me, I am not sure where that docile sanctuary lies. From the womb, my genetic code has lead an anarchist movement, using my own immune … Continue reading

Let’s Talk Bananas, Money, New Friends,….and Single Life with a Sick Child

What does it do to a single parent when a child is diagnosed with a chronic illness? I won’t pretend to know what effect a chronic illness has on a marriage. My marriage was over before my son was diagnosed … Continue reading

How This Lightweight Folding Wheelchair Got This Rare Disease Family Traveling Again

The following was written by Janine Vasquez, mom and wife to a variant CAPS (cryopyrin associated periodic syndromes) crew. Most parents look forward to the day their child no longer has to use a stroller or need a diaper bag … Continue reading