How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?

Having a chronically sick child means your world gets turned upside down and inside out. You no longer get to live the normal life you once had or imagined for your child and your family. Routines change, friends may change, … Continue reading

Singing in a Storm

The calm in our minds may just be the eye of a storm, but for me, I am not sure where that docile sanctuary lies. From the womb, my genetic code has lead an anarchist movement, using my own immune … Continue reading

Let’s Talk Bananas, Money, New Friends,….and Single Life with a Sick Child

What does it do to a single parent when a child is diagnosed with a chronic illness? I won’t pretend to know what effect a chronic illness has on a marriage. My marriage was over before my son was diagnosed … Continue reading