Periodic Fever Syndrome in…Dogs? Your Four-Legged Best Friend Could Have a Rare Autoinflammatory Disease

…nwiki en:Image:Gene-duplication.png. Licensed under Public domain via Wikimedia Commons Black Shar_Pei reading by vitalytitov/BigStockPhoto.com Top tan Shar-Pei by Willee Cole/BigStockPhoto.com

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School 504 Plans for Kids with Periodic Fever Syndromes

…ep this in mind when adding accommodations that may cost the school money. Certain accommodations may be better met with the IEP process. Of course, you should ask for everything your child needs to succeed and the school will be required to implement everything in the 504, but understand this is why some schools are resistant to 504 plans. A Note About Standardized Testing Know the laws in your state regarding standardized testing. Students may n…

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CAPS in 2021: Updates & Patient Experiences: Videos & Podcasts

…r process for transitioning patients from pediatric to adult care. https://www.youtube.com/embed/TQbItYSGlWw Make sure to also read Alex’s story from the NIH Director’s Blog Meet Alex-Before and After NIH Trial” as his family were some of the first sharing info and helping families online that were seeking information about NOMID/CINCA. They helped so many of us to find others, and the NIH, and inspired us to start our organization too. Read Alex’…

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