…family, and inappropriate. People do not usually ask people these sorts of questions with common diseases, such as diabetes, cancer, or Alzheimers, yet it seems all too common for people to question people with a rare disease that does not make the news if it is legitimate. This is very inconsiderate and demeaning on many levels. Many patients strive to function fully in their role in society as a student, employee, spouse, and/or caregiver despit…