What is a Periodic Fever Syndrome?

…could be a possibility. This includes an evaluation of the patient’s most common symptoms, blood tests (during flares of symptoms, and during times with no obvious symptoms), and genetic testing for these diseases. If the patient has a rash, a skin biopsy by a dermatologist should be done as well. For some conditions, a genetic test is not yet available, such as for PFAPA. However, it is ideal to rule out the known hereditary periodic fever syndr…

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Caroling for Cures–Help Raise Awareness & Funds for Autoinflammatory Diseases!

…ristmas Carol Music and lyrics app Yes, there is an app for that! And it’s free! If everyone has a digital gadget, they can download an app with the music to use while caroling. You can also find nice books with Christmas music in them that can be used from year to year. Here are a few examples: The Christmas Caroling Songbook Christmas Carols: Complete Verses Then Send Us Your Donations, and Your Videos of Caroling for Cures! Donations can be sen…

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Other Resources

…so for diagnosis and tracking a genetic condition through the family tree. Free Blog Sites These sites let you set up free blogs to keep family and friends up to date when a loved one is facing a health crisis. CaringBridge.org CarePages.com Health Insurance Help Creaky Joints” Kantor & Kantor Insurance Matters For anyone having issues with insurance or disability filing, this part of the Creaky Joints blog is full of good information, and these l…

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