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About Karen Durrant RN

I am a Registered Nurse, President and Founder of the Autoinflammatory Alliance (formerly NOMID Alliance) and parent of three boys–one of whom has an autoinflammatory disease. It is my passion to help increase awareness about autoinflammatory diseases, and empower patients and medical professionals with information, materials and support to help them navigate the complex and challenging path towards diagnosis, and treatment of these rare diseases. In 2006, I founded The NOMID Alliance (now known as Autoinflammatory Alliance) to help increase awareness and improved care and treatments for patients with CAPS and other autoinflammatory diseases. It was the first, and only organization for all autoinflammatory diseases in the United States at the time. Our mission has always been to help patients of all ages with any of these diseases, and we have continued and refined our efforts with our recent name change to the Autoinflammatory Alliance. To help educate and increase more awareness, I co-authored the CAPS medical guidebook that was first published in English in 2008, and small comparative disease chart, and the 2012 version in English and Spanish. I am one of the main authors of the first Comparative Chart of Systemic Autoinflammatory Diseases that was was released with the poster presentation with a published abstract at the Autoinflammation 2013 ISSAID Congress in Lausanne, Switzerland. In addition, I have developed and edited our website since 2006, this blog (along with Jennifer Tousseau), and wallet-sized disease information cards for patients on various autoinflammatory diseases. I have worked in pediatrics for most of my nursing career, from emergency/trauma to research and instructing student nurses in various pediatric units in hospitals throughout the San Francisco Bay Area.

Introducing Our Newest Addition: autoinflammatory-search.org!

We are pleased to announce that our dynamic, autoinflammatory disease search database, based on our comparative chart is now ready for all to use at autoinflammatory-search.org! This project has been highly anticipated, and we hope that everyone will find it … Continue reading

“Virtual 5K Your Way” Supporting the Autoinflammatory Alliance

In honor of Autoinflammatory Awareness Month in August, we have set up a fun, easy “Virtual 5K Your Way” fundraiser to support the Autoinflammatory Alliance. Autoinflammatory diseases are rare, and many have been only recently been discovered in the past … Continue reading

You Can Make a Difference for Autoinflammatory Diseases

As we reach the end of the year, and are looking forward to 2015, we would like to thank all of you that have donated, and shown your support for the Autoinflammatory Alliance. So many have helped us this year … Continue reading