TRAPS Life Without Proper Medication – My Story
All I know is I have so much to tell you of the consequences of a lifetime without treatment.
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Impact of Familial Mediterranean Fever, MKD/HIDS, and TRAPS on Patients and Families
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This 2016 study looked at how familial Mediterarrean fever (FMF), hyperimmunoglobulinemia D with periodic fever syndrome (HIDS), and tumor necrosis factor-associated periodic fever syndrome (TRAPS) affects patients’ lives and their family’s lives. We invited a sample of patients with these … Continue reading
My Truths about Life with a Chronic Illness
Social media has no shortage of “pro-patient” posts. What to do and say, what not to do and say. What color to wear if you care. The constant stream of 10 bullet points about the life struggles of chronic illness. … Continue reading