↓

Systemic Autoinflammatory Disease (SAID) Support

Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

Systemic Autoinflammatory Disease (SAID) Support
Home Menu ↓
Skip to primary content
Skip to secondary content
  • Home
  • Privacy Policy
  • Contact Us
  • Where to Start
  • Diagnostic Tools/Genetic Testing
  • Autoinflammatory Alliance
    • Our History
    • Editor Bios
    • New Name–Same Mission and Goals
      • What Does Our Logo Symbolize?
    • Privacy Policy
    • Disclaimer
  • Disease Specific Info
    • Hyper-Igd Syndrome
    • NLRC4-Associated Macrophage Activation Syndrome-Like Illness
    • Familial Mediterranean Fever
    • TRAPS
    • Cryopyrin-Associated Periodic Syndromes (CAPS)
      • CAPS in 2021: Updates & Patient Experiences: Videos & Podcasts
    • CRMO
  • Videos
  • Action & Advocacy
    • Newsletters
  • Patient Resources
    • Symptom Logs
    • Tips and Resources for Patients (Adults and Children) on Biological Medications
    • Education
    • School Resources
    • Support Groups
    • Clinical Trials
    • NIH
    • Military Families
    • Other Resources
      • Blogs We Like
  • About Us
  • How You Can Help
  • Donate Now
Facebook: social networking Twitter This site's RSS feed

Tag Archives: hids syndrome

Impact of Familial Mediterranean Fever, MKD/HIDS, and TRAPS on Patients and Families

Posted on September 29, 2016 by Jennifer Tousseau author, Karen Durrant RN editor
Reply

This 2016 study looked at how familial Mediterarrean fever (FMF), hyperimmunoglobulinemia D with periodic fever syndrome (HIDS), and tumor necrosis factor-associated periodic fever syndrome (TRAPS) affects patients’ lives and their family’s lives. We invited a sample of patients with these … Continue reading →

Posted in Research | Tagged familial mediterranean fever, fmf, hids, hids syndrome, mkd, traps, traps syndrome | Leave a reply

What is a Periodic Fever Syndrome?

Posted on March 24, 2014 by Jennifer Tousseau

… Continue reading →

Posted in FAQs | Tagged autoinflammatory, autoinflammatory disease, causes of chronic pyrexia in children, cyclic fever syndrome, frequent fever syndrome, frequent fevers, hids syndrome, is periodic fever syndrome contagious, keeps getting fevers, periodic fever, Periodic Fever Syndrome, periodic fever syndrome in children, periodic fever syndrome pfapa, Periodic Fever Syndrome Symptoms, periodic fever syndrome toddler, pfapa syndrome, recurrent fever cancer, recurrent fever in adults, recurrent fever syndrome, recurring fever, symptoms of fever syndromes, what is fever syndrome, what is recurrent fever
Facebook: social networking Twitter This site's RSS feed
No images found!
Try some other hashtag or username

More Information

  • Action & Advocacy
  • FAQs
  • Finding a Diagnosis
  • How the Autoinflammatory Alliance Helps
  • Living with an Autoinflammatory Disease
  • Medications & Treatments
  • News
  • Patient Stories
  • Research
  • School/Work/Insurance Challenges

Most Popular Posts

  • My Child, or I Keep Getting Fevers. What Do I Do?
  • Keeping Medications Cold While Traveling
  • Periodic Fever Syndromes in Adults
  • What is the Most Accurate Way to Take a Temperature?
  • Mouth Ulcer Treatment and Prevention
Visit Autoinflammatory Alliance/SAID Support's profile on Pinterest.

Recent Posts

  • Multisystem Inflammatory Syndrome (MIS-C), COVID-19, and Autoinflammatory Diseases in Children
  • Autoinflammatory COVID-19 Resources for Information
  • TRAPS Life Without Proper Medication – My Story
  • How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?
  • Hope Lives
  • The Pain of Autoinflammatory Diseases: Children and Adults Tell Us What a Flare Feels Like
  • Autoinflammatory Patients Share How NIH Research Saves Lives
  • NIH Research Funding Benefits Everyone by Improving Health for All!
  • Books to Help Kids Living with Chronic Illness
  • Cryopyrin-associated Periodic Syndrome (CAPS) Treatment Guidelines – Studies and Other Resources

Tag Cloud

Hyperimmunoglobulin D Syndrome keeps getting a fever in the afternoon caps nonprofit Awareness month for sapho Awareness month for CRMO anakinra crmo awareness CAPS autoinflammatory disease vs autoimmune cyclical fevers in adults pfapa diagnosis autoinflammatory christmas ornament CRMO nonprofit fmf specialist mvk deficiency nonprofit for dira chronically ill children and school attendance uk child keeps getting fever at night caps autoimmune 504 plan accomodations for autoinflammatory autoimmune disease in children fever mouth ulcers living with illness what is pfapa medication bag

Main Pages

  • About Us
  • Action & Advocacy
    • Newsletters
  • Autoinflammatory Alliance
    • Disclaimer
    • Editor Bios
    • New Name–Same Mission and Goals
      • What Does Our Logo Symbolize?
    • Our History
    • Privacy Policy
  • Contact Us
  • Diagnostic Tools/Genetic Testing
  • Disease Specific Info
    • CRMO
    • Cryopyrin-Associated Periodic Syndromes (CAPS)
      • CAPS in 2021: Updates & Patient Experiences: Videos & Podcasts
    • Familial Mediterranean Fever
    • Hyper-Igd Syndrome
    • NLRC4-Associated Macrophage Activation Syndrome-Like Illness
    • TRAPS
  • Donate Now
  • How You Can Help
  • Patient Resources
    • Clinical Trials
    • Education
    • Military Families
    • NIH
    • Other Resources
      • Blogs We Like
    • School Resources
    • Support Groups
    • Symptom Logs
    • Tips and Resources for Patients (Adults and Children) on Biological Medications
  • Privacy Policy
  • Videos
  • Where to Start

Amazon Disclaimer

SAIDSupport.org is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com.
Privacy Policy
Medical Disclaimer
Contact Us
© 2013 - 2016 - SAID Support - All rights reserved. No part of this website may be copied or duplicated, in print or online, without written permission. SAID Support is produced and managed by the Autoinflammatory Alliance.
↑