How Do You Know You’re One in a Million?

For Rare Disease Day 2015, we asked a simple question from our autoinflammatory community members. The responses were overwhelming, inspiring, and sometimes funny, but all truly show what it is like to live with a very rare disease.

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Be a Rare Disease Day & Autoinflammatory Disease Advocate!

Every year, the last day of February is Rare Disease Day. Most years, this day lands on February 28th, and in rare years like 2016, February 29th marks Rare Disease Day. We encourage everyone who is affected by a rare … Continue reading

Autoinflammatory Alliance’s Rare Disease Day 2014 Activities

How the Autoinflammatory Alliance (formally the NOMID Alliance) was  Involved in Rare Disease Day 2014: Rare Disease Legislative Associates (RDLA) had a number of events, including the RDLA Legislative Conference and Lobby Days in Washington DC.  Two of our NOMID … Continue reading