These groups offer not only support for periodic fever/autoinflammatory conditions, but also help keep patients up to date on research, treatment options, and the latest information about these conditions. The groups are open to invited family and friends of patients dealing with fever syndromes as well.
Autoinflammatory Alliance Moderated Support Groups:
Autoinflammatory Diseases-Rare But Not Alone! Facebook Group
Cryopyrin-assocaited Periodic Syndromes (CAPS) Facebook Group
Other Autoinflammatory Support Groups:
Rare Connect Behcet’s Community
We have a list of other periodic fever syndrome support group links on our website. If you have a suggested group, please contact us.
The Autoinflammatory Alliance is a nonprofit organization dedicated to helping those with autoinflammatory diseases.
Donate now to help with awareness, education, and research for these rare diseases.