Blogs We Like

Here are some other blogs that we really like, and think that you will too:

Autoinflammatory Diseases: Misadventures of the Immune System is an informative  patient-friendly blogwritten by Dr Jonathan Hausmann MD, a pediatric and adult rheumatology fellow at Boston Children’s Hospital and Beth Israel Deaconess Medical Center with an interest in autoinflammatory diseases.

NOMID Nomad; A Journey with Neonatal Onset Multisystem Inflammatory Disease – Follow the journey of Martha who was born with NOMID before it had a name or treatment.

NIH Director’s Blog written by Dr Francis S. Collins, M.D., Ph.D, Director of the NIH

RareConnect Moderators blog “This website has been created to guide the RareConnect moderators on their role role as moderators and patient advocates.”

Rare Disease Dialog, the official NORD blog

Rare Disease Blogs is a joint EURORDIS/NORD project whose aim it is to bring together key international opinion leaders in the fields of rare diseases & orphan drugs in order to promote debate and foster interaction with members of the public.

Global Genes Project blog the official blog of the Global Genes Project

Creaky Joints – an arthritis support community and educational resource.

Sweet’s Syndrome UK – Informative blog devoted to Sweet’s Syndrome