Tips for Resolving Problems with Specialty Pharmacy Medications

First, What is a Specialty Pharmacy? Some medications can only be obtained through a specialty pharmacy. Usually these are higher priced medications used for complex diseases. Many biologics used in autoinflammatory diseases can only be obtained through a specialty pharmacy. … Continue reading

Supporting Children with Periodic Fever Syndromes at Schools in the U.K.

A number of children with periodic fever syndromes, also known as systemic autoinflammatory diseases (SAID) need accommodations at their school to help to manage their needs.  These children may have a range of needs, but most need a plan to … Continue reading

What’s Your Best Day Like? (Despite SJIA)

In honor of May being National Arthritis Awareness Month, we are focusing this blog post on a rare autoinflammatory arthritis, systemic-onset juvenile idiopathic arthritis (SJIA), which is also referred to as Still’s disease. We have invited Becky Milne, whose 13-year-old … Continue reading