For Rare Disease Day 2015, we asked a simple question from our autoinflammatory community members. The responses were overwhelming, inspiring, and sometimes funny, but all truly show what it is like to live with a very rare disease.
Continue readingEvery year, the last day of February is Rare Disease Day. Most years, this day lands on February 28th, and in rare years like 2016, February 29th marks Rare Disease Day. We encourage everyone who is affected by a rare … Continue reading
As we reach the end of the year, and are looking forward to 2015, we would like to thank all of you that have donated, and shown your support for the Autoinflammatory Alliance. So many have helped us this year … Continue reading