Distraction Techniques to Reduce Pain and Anxiety for Your Child When Giving an Injection

Blowing bubbles while getting an injection is a great way to calm kids.

Blowing bubbles while getting an injection is a great way to calm kids.

Unfortunately for many patients with periodic fever syndromes, the recommended medication is one that must be injected. There are a number of injectable biologic medications that are used–some with FDA approval specific to one of the autoinflammatory diseases, but more often they are used “off label” (meaning not FDA approved specifically for the disease it is being prescribed for by a doctor.) For example, Kineret® (anakinra) is approved by the FDA for use in patients with the NOMID/CINCA form of CAPS (it is approved in the EU for all forms of CAPS.)

All injections can create worry and anxiety in children, but some of the medications used to treat autoinflammatory diseases are in solutions that can create pain when the medication is injected into the tissues.  This can make giving these injections even more difficult for children, more so than for other injections, such as vaccines or insulin (used in diabetic patients).  Some patients need frequent injections for their disease, ranging from daily injections for NOMID patients on anakinra, to weekly to injections given just with flares.

For some of these medications, distraction from the pain is the best way to help alleviate the pain and anxiety when giving injections to children. A good distraction will focus your child’s thoughts away from the shot and pain and onto the distraction. According to a pain control study published in 2007 in Pediatrics, the journal of the American Academy of Pediatrics, “…areas of the brain known to process pain stimuli have been shown to be less active during distraction tasks.” The authors go on to state, “Related to the quality of the distraction… the more children are engaged in distraction, regardless of the type of distraction stimuli, the lower the pain.” Essentially, if the brain is thinking about something else, it won’t register some of the pain.

Here are some ideas of how to distract your child when giving an injection. Many of these will also help during blood draws.

sensory balls distractionSensory Balls or Toys

Give your child something to hold and feel in his hands. This may be a bumpy ball, squishy ball, or a pin art block.

Blow Something

Give your child a kazoo, party blower, or harmonica to use during the injection. Or blow bubbles.

Candy

Sucking on lollipop or hard candy, or chewing gum can be a good distraction. For babies, put some fruit juice or other sweet substance on your baby’s pacifier. In some studies sucking on a pacifier with sucrose and/or breastfeeding have decreased babies’ crying time after immunizations.

Watch Videos

Maybe it’s comedy or music videos that relax your child. Whatever their interests, keep a collection of videos that your child really likes to play during the injection. YouTube can be especially helpful for this.

injection distractionUse Visual Motion

Have your child watch something relaxing. Some ideas include an hourglass, color drop toy, or a perpetual motion machine or desk toy. Also, search Pinterest for a “calm down jar”. Here you will find instructions for making a glitter and water filled jar that when shaken is very relaxing to watch, similar to a snow globe. Try a snow globe too.

Games

Have your child play an interactive video game or app on your smartphone.

Physical Touch

Physical touch by a parent, sibling, or other close family member can also help alleviate pain. Your child may want someone to hold hands with or sit in a lap during the shot.

Biofeedback

For kids, and adults, with severe needle or shot anxiety, biofeedback therapy can be especially helpful. With a trained therapist and the help of a computer, patients learn to control their reactions to anxiety by activity lowering their heart rate, relaxing muscles, or even changing the temperature in their hands. Small electrodes are places on a part of the body that will be focused on, such as shoulder muscles. The patient then focuses on relaxing those muscles and the results can be seen on a computer screen. This therapy helps the patient relax and take control of their fear when getting or giving themselves an injection.

Healthier Ever After Injections Tips Booklet

This booklet written by Autoinflammatory Alliance board members gives you more tips and helpful advice for helping give kids shots. Click here to for more information about the booklet, and to download a copy of the book. We will have it for order in the printed form in April 2014.

Click here for tips on reducing the pain of an anakinra injection.

Click here for reviews of the ShotBlocker and Buzzy Bee Pain Relief System.

Click here for more tips and resources for patients on biologic medications.

References

  1. Pediatrics: Pain Reduction During Pediatric Immunizations: Evidence-Based Review and Recommendations
  2. Distraction therapy at the Great Ormond Street Hospital also download their helpful pdf of techniques from this same page on their website.
  3. Healthier Ever After– the Autoinflammatory Alliance guide to helping children with their injecitons.

*Top photo of child blowing bubbles by Samuel Borges, BigStockPhoto.com

 

 

Mouth Ulcer Treatment and Prevention

rp_atypical-CAPS-mouth-ulcer-300x300.jpg

Mouth ulcer in an atypical CAPS patient. Mouth ulcers are a common fever syndrome symptom.

Mouth ulcers, also commonly referred to as canker sores, are medically termed aphthous ulcers or aphthous stomatitis. They are white, grey, or red sores that can appear anywhere inside the mouth, including on the gums and inside of the lip. They are a common symptom in many recurrent fever syndromes, including HIDS, PFAPA, TRAPS, Familial Behcet-like autoinflammatory syndrome (Haploinsufficiency of A20) and Behçet’s disease. Patients with other autoinflammatory diseases, such as DIRA, may also develop mouth sores.

These sores are very painful and in some cases make it very difficult for the patient to eat and drink. Treating the underlying disease does help lessen the mouth sores. But many patients develop the sores even with treatment.  Here are some mouth ulcer treatment and prevention options that many patients have found helpful in treating mouth ulcers due to autoinflammatory disease. Since each patient and disease is different, results will vary by individual.

As always, speak with your doctor before tying any treatment or supplement, as there could be interactions with your current medications, allergic reactions, and dosing concerns. Any of the listed treatments must be prescribed, or recommended by your doctor before initiating use of these medications. This information below is for discussion only-we are not recommending the use of any of these medications.  That is for your doctor to decide.

Lysine

Lysine is an essential amino acid often used to treat canker sores. It comes as a pill or liquid and can be taken daily or only during outbreaks. It works best if taken before the ulcer develops. In some cases, early treatment may prevent the ulcer from fully developing. However, it can be taken to treat an active outbreak as well. Contact your doctor for what dose you can take.

Colchicine

Colchicine is a common prescription medication for familial Mediterranean fever, Behçet’s, and gout. While it may not prevent or treat flares in all systemic autoinflammatory diseases, it can help with some of the symptoms, such as preventing mouth ulcers.

Prescription Magic Mouthwash

Magic mouthwash is a prescription mouthwash that you use to rinse and then spit. It primarily contains lidocaine, which numbs the mouth. There are different brands available that may also contain hydrocortisone to reduce inflammation, the antifungal medication nystatin, an antibiotic, and/or the antacid magnesium hydroxide to coat the mucus membranes inside the mouth.

Milk of Magnesia and Liquid Benadryl

This is a liquid mouthwash you can make at home, but discuss this with your doctor before you begin using this treatment. Mix 1/2 teaspoon each of milk of magnesium and liquid Benadryl. Swish it in the mouth and then spit it out. Do not drink it. Some people mix it up, and squirt it into the mouth with an oral medicine syringe to coat the mouth, then spit it out.

Hydrogen Peroxide and Milk of Magnesia

Dab a drop of hydrogen peroxide mixed with water directly on the ulcer with a cotton swab. The National Institutes of Health (NIH) recommends mixing one part hydrogen peroxide to one part water followed by a dab of Milk of Magnesia directly onto the sore. You can do this three to four times a day.

B Vitamins

Folic acid and vitamin B12 deficiencies can cause mouth ulcers. A daily B vitamin supplement may help reduce or prevent mouth sores.

A Benzocaine Warning

In 2011, the FDA released a warning that using products containing benzocaine could lead to methemoglobinemia, a rare blood disorder. Most of the cases reported were in children under that age of two who were treated with benzocaine gel products for teething pain. Adult cases have also been reported. The FDA recommends that benzocaine products not be used on children younger than two without medical supervision.

Click here to learn the difference between a canker sore (mouth ulcer) and a cold sore.

References

  1. Drugs.com: Folic Acid
  2. Drugs.com: Colchicine
  3. Drugs.com Magic Mouthwash
  4. WebMD: Dental Health and Canker Sores
  5. Medline Plus: Canker sore
  6. PubMed Health: Folate deficiency
  7. PubMed.gov: Aphthous ulcers and vitamin B12 deficiency
  8. FDA: Benzocaine Topical Products: Sprays, Gels and Liquids – Risk of Methemoglobinemia

 

What is the Most Accurate Way to Take a Temperature?

how to take your temperatureWhen dealing with recurring fevers in children or adults, it’s not uncommon to become concerned with what is the best way to take a temperature. Different methods of taking a temperature will produce different average readings. However, several methods that measure the internal temperature, including oral, axillary, rectal, temporal and ear have been found in various studies to all be accurate ways to take a temperature.

It is important to properly take a temperature with whatever method you choose, as if it is done incorrectly, the reading may be inaccurate and will generally read lower than the true temperature.

What is a Fever?

A fever is considered to be a rectal, ear or temporal artery temperature of 100.4ºF (38ºC) or higher.

If you are using an oral or oral pacifier thermometer, many doctors would say that a fever is also over 100.4ºF (38ºC), but some may consider a fever in a young patient, to be an oral temperature of 100ºF or 37.8ºC. Talk to your doctor about what temperature range they would consider a fever and about the recommended treatment.

With the axillary (armpit) temperature, a fever is present if the reading is  99.4ºF or higher,  or over 37.2ºC, but others consider 99.0ºF to be a fever, depending on your doctor’s recommendation.

Keep in mind, for these systemic autoinflammatory diseases, it’s not just a fever. With that rise in temperature comes inflammation in various parts of the body. You or your child may “only” be at 99.5 degrees F, but feel miserable. Therefore symptoms and how you or your child feels need to be considered as well when making treatment decisions. Also, if you are on prescribed medications, such as NSAIDS for your disease, your body may not manifest a temperature over what is considered to be a fever, but you could still be symptomatic.

Click here to read more about Normal Body Temperature and the Periodic Fever Syndromes.

Which Temperature Taking Method Should You Use?

The key to deciding how to take a temperature is to choose a method that you and/or your doctor are most comfortable with and use it every time. You want to be consistent when taking yours or your child’s temperature. Switching thermometer types and trying to compare different methods each time you take a temperature will only get confusing. Use the same type of thermometer every time and get to know what a normal temperature range is for you or your child when not in a flare and when in a flare using that one method.

Also, follow the directions that come with whatever thermometer you choose, and if it uses batteries, be aware that if it is starting to be inconsistent with readings, it may be time to change the battery. If it continues to not work right, get a new one, as you need a reliable, accurate and consistent method of taking temperatures.


Here are some tips on using the various thermometers:

ear thermometer fever syndromes

Studies show ear thermometer temperatures are comparable to rectal temperatures.

Tympanic (Ear) Thermometers

Tympanic temperature readings average about the same as rectal.

Take the temperature in both ears and use the highest reading unless you or your child has been laying on that ear.

Several things can affect the reading in the ear including laying on one ear, an ear infection, wax build up, and angle of the thermometer.

For some individuals, this method is not the best. According to the Mayo Clinic, those with a “small, curved ear canal” will have inaccurate readings.

Temporal Artery Thermometers

Temporal thermometer readings average about the same as rectal and ear thermometer readings in some studies, but lower in others. These thermometers seem to have the most inconsistencies in how they compare to other methods. Differences may be due to which brand was used in the study and if the patients were febrile or healthy. Also, incorrect use of these thermometers will make them inaccurate.

Be sure to read the instructions as these have a specific method of use. For example, the Exergen forehead thermometer requires that you scan the forehead and artery behind the ear while holding the button down the entire time. Lifting off the button too soon will give you a lower reading.

The following video demonstrates how to use the Exergen forehead thermometer:


Oral/Rectal/Axillary Digital Thermometers

In the past, people used glass mercury thermometers, but this is now not recommended, and they should be disposed of at a proper collection facility. There are a number of safe, and accurate ways to take a temperature available that are preferred for patients.

Oral and axillary temperatures average about .5 F to 1.0 F (.3 C to .6 C) degrees below rectal, ear, and temporal readings. Add .5 to 1.0 when taking orally or under the arm to determine the comparable rectal temperature.

Eating and drinking can affect the accuracy when taking an oral temperature. Wait 15 to 30 minutes after eating and drinking before taking an oral temperature.

Axillary, where you measure the temperature under the armpit, can be less reliable for getting an accurate body temperature, and can register up to a degree lower than rectal or other methods of taking the internal temperature.  But it is still considered acceptable if done correctly and is used in many hospitals.

This method can be done more accurately if the thermometer is properly placed in the deepest pit part of the axilla (armpit), and held in that place, with the arm folded down and over the thermometer, until the thermometer is done testing the temperature.  This method is the most used by a number of patients, since a temperature can be done with any digital or standard (non-mercury) thermometer, and the least expensive thermometer on the market. It may also be the most convenient for travel, since they are small and easy to replace.

A rectal temperature is generally considered to be the most accurate, and the standard for monitoring the core body temperature, but it is generally not recommended for use in patients, due to the risk of rectal perforation and tears with this method.

Have a separate thermometer to use for oral than for rectal.

taking temperature baby

Taking the temperature under the armpit is safer than rectal. Add .5 to 1.0 F or .3 to .6 C to the reading when taking axillary temperatures. Photo by ftlaudgirl/Bigstockphoto.com

Age Considerations

Newborn to 6 months

Use an axillary or temporal thermometer with newborns and young babies. The ear thermometer will most likely be too big for a newborn baby. The pacifier thermometers may work for some, but babies tend to spit these out long before an accurate reading can be made.

Toddler and young children

Tympanic, temporal artery, or axillary temperatures are the best methods for this age group.  Oral may be difficult in some younger children because they often will bite on the thermometer, and may not keep it properly in place in the mouth.

Teen and Adult Women

A woman’s temperature fluctuates normally with her menstrual cycle and will be higher near ovulation and lower the rest of the cycle.

Time of Day

The time of day will make a difference in body temperature. Typically your temperature is lowest in the morning before you get out of bed. Temperatures will naturally rise throughout the day and change based on your activity level.

What if the Temperature Changes?

It is normal in any of these methods to get various readings, even when taking the temperature multiple times within just a few minutes. Our body temperature normally fluctuates and you may get a difference of a full degree or more in just a few minutes or in the case of ear thermometers, between the left and right ears. And this does seem to happen often for some with fever disorders while in a flare. Know that this is normal, but if you are not confident that you are getting an accurate reading, try another method or thermometer.

When taking a temperature, always record the temperature and any other symptoms. Photo by art_of_sun/Bigstockphoto.com

When taking a temperature, always record the temperature and any other symptoms. Photo by art_of_sun/Bigstockphoto.com

Tips for Temperature Logging

When monitoring daily temperature for your symptom journal, it is best to take the baseline temperature at the same time of day, generally in the morning. You can take it more often, and at other times of the day as needed, but consistency is the key for monitoring daily, and between flares.

Also, if you get a high or low reading, re-take the temperature! It may be correct, but it is best to confirm the temperature if it is unusual, and the doctor will ask you if you did take it again, as sometimes there are errors with thermometers, or technique in taking the temperature.

You want to have the most accurate information for your daily symptom logs, so if you need to do more than one temperature to get an accurate reading, or repeat it again later, make sure to record these too. Most of the time, you will not need to do more than one temperature a day, if no disease flares or symptoms are present, but you may need to do more frequent temperatures on days with disease flares.

Click here for reviews of some of the best thermometers for fever syndromes.

References

  1. Mayo Clinic: Thermometer basics: Taking your child’s temperature
  2. PubMed.gov: Clinical Accuracy of Tympanic Thermometer and Noncontact Infrared Skin Thermometer in Pediatric Practice: An Alternative for Axillary Digital Thermometer.
  3. PubMed.gov: Investigating relationships among five temperature measurement sites in newborns
  4. PubMed.gov: Comparison of rectal, axillary, tympanic, and temporal artery thermometry in the pediatric emergency room.
  5. PubMed.gov: Can we trust the new generation of infrared tympanic thermometers in clinical practice?
  6. PubMed.gov: Are Temporal Artery Temperatures Accurate Enough to Replace Rectal Temperature Measurement in Pediatric ED Patients?
  7. PubMed.gov: A systematic review of the accuracy of peripheral thermometry in estimating core temperatures among febrile critically ill patients.
  8. MedinePlus: Fever
  9. Differences in noninvasive thermometer measurements in the adult emergency department.
  10. Evaluation of temporal artery and disposable digital oral thermometers in acutely ill patients.
  11. Comparison of body temperatures in children measured using 3 different thermometers: tympanic, skin and digital axillary
  12. UpToDate: Patient education: Fever in children (Beyond the Basics)
  13. Seattle Children’s: Fever – Myths Versus Facts

 

*Updated 8/18/15.

*Child taking ear temperature photo by greenland/Bigstockphoto.com.