For Rare Disease Day 2015, we asked a simple question from our autoinflammatory community members. The responses were overwhelming, inspiring, and sometimes funny, but all truly show what it is like to live with a very rare disease.
Continue readingYour child has just been diagnosed with an autoinflammatory illness. What next? For now, I’m not going to address physical symptoms, treatment options or new precautions you must take. There are plenty of places to get help with these, and … Continue reading
It’s Not Just Arthritis Juvenile arthritis is not “just arthritis,” the same way a brain tumor is not “just a headache” or a torn ligament is not “just a sprain.” Osteoarthritis (which most people get if they live long enough) … Continue reading