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Systemic Autoinflammatory Disease (SAID) Support

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Systemic Autoinflammatory Disease (SAID) Support
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Tag Archives: sjia

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Hope Lives

Posted on August 28, 2017 by Jeri Tellez

I remember when my son was first diagnosed with an autoinflammatory illness, systemic juvenile idiopathic arthritis (SJIA). It seemed like nothing was helping. It was very frustrating, not knowing what to expect, and not knowing why he wasn’t getting better. … Continue reading →

Posted in Patient Stories | Tagged juvenile arthritis, sjia, Systemic Juvenile Idiopathic Arthritis

Reflections of a Mama Bear

Posted on June 3, 2016 by Jeri Tellez
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Seven and a half years. That’s how long I’ve been a mama bear. Mama to a child with a chronic illness. Years full of doctor appointments, trips to the pharmacy, tests, scans, and adjusting plans because of pain. Years full … Continue reading →

Posted in Living with an Autoinflammatory Disease | Tagged sjia, still's disease, Systemic Juvenile Idiopathic Arthritis, systemic juvenile onset arthritis | Leave a reply

To Medicate or Not to Medicate…

Posted on April 4, 2016 by Jeri Tellez

For those newly diagnosed parents: I understand your reluctance to use any more medications than necessary, but let me give you some facts. When a child is newly diagnosed, there is a lot to process with the diagnosis, and a … Continue reading →

Posted in Medications & Treatments | Tagged juvenile arthritis, sjia, still's disease, Systemic-Onset Juvenile Idiopathic Arthritis

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Most Popular Posts

  • My Child, or I Keep Getting Fevers. What Do I Do?
  • How to Use the Comparison Chart of Systemic Autoinflammatory Diseases
  • What is Aphthous Stomatitis?
  • What is the Most Accurate Way to Take a Temperature?
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Recent Posts

  • Multisystem Inflammatory Syndrome (MIS-C), COVID-19, and Autoinflammatory Diseases in Children
  • Autoinflammatory COVID-19 Resources for Information
  • TRAPS Life Without Proper Medication – My Story
  • How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?
  • Hope Lives
  • The Pain of Autoinflammatory Diseases: Children and Adults Tell Us What a Flare Feels Like
  • Autoinflammatory Patients Share How NIH Research Saves Lives
  • NIH Research Funding Benefits Everyone by Improving Health for All!
  • Books to Help Kids Living with Chronic Illness
  • Cryopyrin-associated Periodic Syndrome (CAPS) Treatment Guidelines – Studies and Other Resources

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