Introducing Our Newest Addition: autoinflammatory-search.org!

We are pleased to announce that our dynamic, autoinflammatory disease search database, based on our comparative chart is now ready for all to use at autoinflammatory-search.org! This project has been highly anticipated, and we hope that everyone will find it … Continue reading

How This Lightweight Folding Wheelchair Got This Rare Disease Family Traveling Again

The following was written by Janine Vasquez, mom and wife to a variant CAPS (cryopyrin associated periodic syndromes) crew. Most parents look forward to the day their child no longer has to use a stroller or need a diaper bag … Continue reading

List of Cryopryin-associated Periodic Syndromes Research and Information

Cryopryin-associated periodic syndromes include familial cold autoinflammatory syndrome (FCAS), Muckle-Wells syndrome (MWS), and neonatal onset multisystem inflammatory disease (NOMID). Below are some links to studies and other informative resources on these fever syndromes. This is not an all-inclusive list. For … Continue reading