In August 2013, Autoinflammatory Alliance board member Dorelia Rivera met with the U.S. Secretary of Health and Human Services Kathleen Sebelius, Dr. Francis Collins the Director of the National Institutes of Health (NIH), Ms Kathy Russell the CEO of the Children’s Inn at the NIH, and Dr. Raphaela Goldbach-Mansky, who is an expert on autoinflammatory diseases and U.S. Federal Liaison to The Autoinflammatory Alliance.
Dorelia met with them, along with her family while she was at the Children’s Inn (pictured) at the National Institutes of Health (NIH) to increase awareness about the challenges and experiences of patients with autoinflammatory diseases. It was a very helpful awareness meeting, and we are thankful that Dori could get the word out to the top official in the U.S. overseeing health care! Thanks again Dori for all that you do.