About Jennifer Tousseau

In addition to editing and writing for SAID Support, Jennifer is a Autoinflammatory Alliance board member and support group moderator.

List of Cryopryin-associated Periodic Syndromes Research and Information

Cryopryin-associated periodic syndromes include familial cold autoinflammatory syndrome (FCAS), Muckle-Wells syndrome (MWS), and neonatal onset multisystem inflammatory disease (NOMID). Below are some links to studies and other informative resources on these fever syndromes. This is not an all-inclusive list. For … Continue reading

Studies on Biological Medication Used in Pregnant and Breastfeeding Autoinflammatory Patients

Updated 2/3/2022 Below are some published studies that include autoinflammatory patients. For more studies, search Pubmed.gov. A Systematic Review of the Safety of Blocking the IL-1 System in Human Pregnancy (Jan 2022) – This is a detailed analysis of 88 … Continue reading

How Do You Know You’re One in a Million?

For Rare Disease Day 2015, we asked a simple question from our autoinflammatory community members. The responses were overwhelming, inspiring, and sometimes funny, but all truly show what it is like to live with a very rare disease.

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