Social media has no shortage of “pro-patient” posts. What to do and say, what not to do and say. What color to wear if you care. The constant stream of 10 bullet points about the life struggles of chronic illness. … Continue reading
I have been blessed with a happy life. My story is meant as a message of hope for all, but especially for patients with autoinflammatory diseases. As the youngest of six children growing up in rural Vermont, I always knew … Continue reading
The following was written by Jill DiStefano, Olivia’s mom. Olivia was the 4th person diagnosed with NLRC4 macrophage activation-like syndrome (NLRC4-MAS), a type of periodic fever syndrome. This is Olivia’s story and how we came to find out about her … Continue reading