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“Virtual 5K Your Way” Supporting the Autoinflammatory Alliance

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…toinflammatory disease information for doctors and patients worldwide. Our comparative chart of autoinflammatory diseases is the leading teaching guide to medical professionals globally. This has led to many more patients getting diagnosed and onto treatment. However there is a great need for more information, and updated materials, which we are working on, but we need more funds to get these projects done. We have the largest moderated private pa…

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Keeping Medications Cold While Traveling

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…t plug into your vehicle’s 12-volt plug. However, many only cool to a maximum temperature difference compared to the outside temperature and this may not keep your biological medication at a proper stable temperature. For example, a plug-in cooler that cools to 40 degrees F below the outside temperature will not be cold enough for Kineret if the outside temperature is 100 degrees F. If camping in the winter or cool locations, one of these plug-in…

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List of Cryopryin-associated Periodic Syndromes Research and Information

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…ks.31,33,35 Other patients may need less frequent administration of canakinumab.” Canakinumab treat-to target strategies increase complete response rate in CAPS – Real-life effectiveness of canakinumab in CAPS was significantly lower than in controlled trials. Treat-to-target strategies may improve the outcome of children and adults living with CAPS. NOMID Nomad – A Journey with Neonatal Onset Multisystem Inflammatory Disease – Follow the journey…

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