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Systemic Autoinflammatory Disease (SAID) Support

Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

Systemic Autoinflammatory Disease (SAID) Support
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Tag Archives: autoinflammatory specialist

The National Institutes of Health: Helping Patients with Recurrent Fever Syndromes for over 20 Years

Since 1994, researchers at the National Institutes of Health in Bethesda, MD near Washington D.C., have been studying various periodic fever syndromes and providing care and treatment to thousands of patients with these rare conditions. Through two main studies, patients … Continue reading →

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Most Popular Posts

  • What is the Most Accurate Way to Take a Temperature?
  • My Child, or I Keep Getting Fevers. What Do I Do?
  • Normal Body Temperature and the Periodic Fever Syndromes
  • What is a Periodic Fever Syndrome?
  • Keeping Medications Cold While Traveling
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Recent Posts

  • TRAPS Life Without Proper Medication – My Story
  • How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?
  • Hope Lives
  • The Pain of Autoinflammatory Diseases: Children and Adults Tell Us What a Flare Feels Like
  • Autoinflammatory Patients Share How NIH Research Saves Lives
  • NIH Research Funding Benefits Everyone by Improving Health for All!
  • Books to Help Kids Living with Chronic Illness
  • Cryopyrin-associated Periodic Syndrome (CAPS) Treatment Guidelines – Studies and Other Resources
  • 2016 Autoinflammatory Alliance Year in Review
  • Tips for Resolving Problems with Specialty Pharmacy Medications

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    • CRMO
    • Cryopyrin-Associated Periodic Syndromes (CAPS)
    • Familial Mediterranean Fever
    • Hyper-Igd Syndrome
    • NLRC4-Associated Macrophage Activation Syndrome-Like Illness
    • TRAPS
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    • Eurofever Classification Criteria
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