Singing in a Storm

The calm in our minds may just be the eye of a storm, but for me, I am not sure where that docile sanctuary lies. From the womb, my genetic code has lead an anarchist movement, using my own immune … Continue reading

Supporting Children with Periodic Fever Syndromes at Schools in the U.K.

A number of children with periodic fever syndromes, also known as systemic autoinflammatory diseases (SAID) need accommodations at their school to help to manage their needs.  These children may have a range of needs, but most need a plan to … Continue reading

“Perfect” Attendance Programs Stigmatize Kids with Chronic Illnesses

Many schools in many communities in the U.S. and around the world reward students who have perfect attendance. They may win a simple certificate during an assembly or much bigger prizes, such as a computer, bikes, trips to Disneyland, iPads, … Continue reading