Category Archives: School/Work/Insurance Challenges

There are many challenges with autoinflammatory diseases and chronic illness, and since these diseases begin in infancy or early childhood (in most cases), dealing with day care, preschool, elementary, middle, high school and college with these diseases are common concerns. Many patients need a 504 or IEP (used in the US school system for medical or physical challenges.) Many people also have issues with work, disability, and challenges with insurance, getting genetic testing, and also challenges with state and federal medical insurance programs.

How to Pay for the Tests and Care You or Your Child with an Autoinflammatory Syndrome Needs

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Tests and medications necessary to diagnosis and treat autoinflammatory syndromes are often denied by insurance companies. That’s unfortunately a reality of dealing with such rare diseases. Tests may be considered too expensive or not well understood and medications are often … Continue reading →