Jennifer Tousseau
Winter Tips for Those Whose Autoinflammatory Disease Symptoms are Triggered By the Cold
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There are several Autoinflammatory/periodic fever syndromes that have flares triggered by cold or cooling temperatures. These syndromes include cryopyrin-associated periodic syndromes (CAPS), such as familial cold autoinflammatory syndrome (FCAS) and Muckle-Wells syndrome (MWS), NLRP12/FCAS2, PLCG2-associated antibody deficiency & immune dysregulation … Continue reading
How This Lightweight Folding Wheelchair Got This Rare Disease Family Traveling Again
The following was written by Janine Vasquez, mom and wife to a variant CAPS (cryopyrin associated periodic syndromes) crew. Most parents look forward to the day their child no longer has to use a stroller or need a diaper bag … Continue reading