TRAPS Life Without Proper Medication – My Story
All I know is I have so much to tell you of the consequences of a lifetime without treatment.
Continue readingJennifer Tousseau
How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?
Having a chronically sick child means your world gets turned upside down and inside out. You no longer get to live the normal life you once had or imagined for your child and your family. Routines change, friends may change, … Continue reading
The Pain of Autoinflammatory Diseases: Children and Adults Tell Us What a Flare Feels Like
Pain. Hurt. Fire. Needles. Burning. Knives. Those are the words used by children and adults who have a systemic autoinflammatory disease (SAID). From diseases with sporadic attacks of inflammation, such as PFAPA, to the more chronic and damaging autoinflammatory diseases … Continue reading