Let’s Talk Bananas, Money, New Friends,….and Single Life with a Sick Child

What does it do to a single parent when a child is diagnosed with a chronic illness? I won’t pretend to know what effect a chronic illness has on a marriage. My marriage was over before my son was diagnosed … Continue reading

How This Lightweight Folding Wheelchair Got This Rare Disease Family Traveling Again

The following was written by Janine Vasquez, mom and wife to a variant CAPS (cryopyrin associated periodic syndromes) crew. Most parents look forward to the day their child no longer has to use a stroller or need a diaper bag … Continue reading

“Virtual 5K Your Way” Supporting the Autoinflammatory Alliance

In honor of Autoinflammatory Awareness Month in August, we have set up a fun, easy “Virtual 5K Your Way” fundraiser to support the Autoinflammatory Alliance. Autoinflammatory diseases are rare, and many have been only recently been discovered in the past … Continue reading