Singing in a Storm

The calm in our minds may just be the eye of a storm, but for me, I am not sure where that docile sanctuary lies. From the womb, my genetic code has lead an anarchist movement, using my own immune … Continue reading →

Supporting Children with Periodic Fever Syndromes at Schools in the U.K.

A number of children with periodic fever syndromes, also known as systemic autoinflammatory diseases (SAID) need accommodations at their school to help to manage their needs.  These children may have a range of needs, but most need a plan to … Continue reading →

“Perfect” Attendance Programs Stigmatize Kids with Chronic Illnesses

Many schools in many communities in the U.S. and around the world reward students who have perfect attendance. They may win a simple certificate during an assembly or much bigger prizes, such as a computer, bikes, trips to Disneyland, iPads, … Continue reading →