How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?

Having a chronically sick child means your world gets turned upside down and inside out. You no longer get to live the normal life you once had or imagined for your child and your family. Routines change, friends may change, … Continue reading

Singing in a Storm

The calm in our minds may just be the eye of a storm, but for me, I am not sure where that docile sanctuary lies. From the womb, my genetic code has lead an anarchist movement, using my own immune … Continue reading

What’s Your Best Day Like? (Despite SJIA)

In honor of May being National Arthritis Awareness Month, we are focusing this blog post on a rare autoinflammatory arthritis, systemic-onset juvenile idiopathic arthritis (SJIA), which is also referred to as Still’s disease. We have invited Becky Milne, whose 13-year-old … Continue reading