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…a long list of best days. When too many days are bad, even the smallest triumphs become cause for celebration. Our best days have been the day Maren could finally hold her newborn brother without her wrists, shoulders, and elbows giving out and just last year, her joints finally allowed her to learn to ride a bike at the age of 12. My personal favorite day was when she finally started walking again just before she turned 2. When Maren was able to…
…r supplement, you are encouraged to report the incident here. 504 School Accommodations Tips and Resources School 504 Plans for Kids with Periodic Fever Syndromes These resources below come from arthritis organizations. Since many with autoinflammatory conditions have arthritis as a symptom, these tips are helpful for them as well. Sample 504 Plan Accommodations Arthritis Foundation 504 Plan Resources National Patient Travel Center The National Pa…
…ormal, but they have to learn a new definition of normal. Their siblings become like nurses, and their parents get a medical education. Please, whatever you do, don’t ever say, “it’s just arthritis.” Jeri’s son Will celebrating his sister Carmen’s quinceanera. Jeri says Carmen is a big part of Will’s team that helps him cope and fight JA. Jeri Téllez is mom to a child with an autoinflammatory type of arthritis known as systemic onset juvenile id…
