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Systemic Autoinflammatory Disease (SAID) Support

Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

Systemic Autoinflammatory Disease (SAID) Support
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carol and ali

Published December 9, 2015 at 464 × 511 in My Story – Living with TRAPS, a Rare Genetic Autoinflammatory Disease

Carol with Muhammad Ali.

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  • My Child, or I Keep Getting Fevers. What Do I Do?
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  • Multisystem Inflammatory Syndrome (MIS-C), COVID-19, and Autoinflammatory Diseases in Children
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  • TRAPS Life Without Proper Medication – My Story
  • How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?
  • Hope Lives
  • The Pain of Autoinflammatory Diseases: Children and Adults Tell Us What a Flare Feels Like
  • Autoinflammatory Patients Share How NIH Research Saves Lives
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  • Books to Help Kids Living with Chronic Illness
  • Cryopyrin-associated Periodic Syndrome (CAPS) Treatment Guidelines – Studies and Other Resources

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      • CAPS in 2021: Updates & Patient Experiences: Videos & Podcasts
    • Familial Mediterranean Fever
    • Hyper-Igd Syndrome
    • NLRC4-Associated Macrophage Activation Syndrome-Like Illness
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