Happy Mother’s Day to All Our Rare Moms!

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Happy Mother’s Day from the Autoinflammatory Alliance! A special thanks to all the mothers that are in our autoinflammatory, and rare disease communities, and to all women (including many doctors) that care for others as if they were their own. We wanted to honor all our “rare” moms today. Many rare disease organizations are founded by mothers of children with a rare disease (including ours!)

A special thanks to all the moms that are involved in the Autoinflammatory Alliance, volunteering their time and talents to help other families, increase awareness,  advocate and fundraise for our org to help others, on top of their own challenges with caring for an autoinflammatory disease of a loved one, and/or themselves too. We greatly appreciate your help and support!

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About Karen Durrant RN

I am a Registered Nurse, President and Founder of the Autoinflammatory Alliance (formerly NOMID Alliance) and parent of three boys–one of whom has an autoinflammatory disease. It is my passion to help increase awareness about autoinflammatory diseases, and empower patients and medical professionals with information, materials and support to help them navigate the complex and challenging path towards diagnosis, and treatment of these rare diseases. In 2006, I founded The NOMID Alliance (now known as Autoinflammatory Alliance) to help increase awareness and improved care and treatments for patients with CAPS and other autoinflammatory diseases. It was the first, and only organization for all autoinflammatory diseases in the United States at the time. Our mission has always been to help patients of all ages with any of these diseases, and we have continued and refined our efforts with our recent name change to the Autoinflammatory Alliance. To help educate and increase more awareness, I co-authored the CAPS medical guidebook that was first published in English in 2008, and small comparative disease chart, and the 2012 version in English and Spanish. I am one of the main authors of the first Comparative Chart of Systemic Autoinflammatory Diseases that was was released with the poster presentation with a published abstract at the Autoinflammation 2013 ISSAID Congress in Lausanne, Switzerland. In addition, I have developed and edited our website since 2006, this blog (along with Jennifer Tousseau), and wallet-sized disease information cards for patients on various autoinflammatory diseases. I have worked in pediatrics for most of my nursing career, from emergency/trauma to research and instructing student nurses in various pediatric units in hospitals throughout the San Francisco Bay Area.

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