↓

Systemic Autoinflammatory Disease (SAID) Support

Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

Systemic Autoinflammatory Disease (SAID) Support
Home Menu ↓
Skip to primary content
Skip to secondary content
  • Home
  • Privacy Policy
  • Contact Us
  • Where to Start
  • Diagnostic Tools/Genetic Testing
  • Autoinflammatory Alliance
    • Our History
    • Editor Bios
    • New Name–Same Mission and Goals
      • What Does Our Logo Symbolize?
    • Privacy Policy
    • Disclaimer
  • Disease Specific Info
    • Hyper-Igd Syndrome
    • NLRC4-Associated Macrophage Activation Syndrome-Like Illness
    • Familial Mediterranean Fever
    • TRAPS
    • Cryopyrin-Associated Periodic Syndromes (CAPS)
      • CAPS in 2021: Updates & Patient Experiences: Videos & Podcasts
    • CRMO
  • Videos
  • Action & Advocacy
    • Newsletters
  • Patient Resources
    • Symptom Logs
    • Tips and Resources for Patients (Adults and Children) on Biological Medications
    • Education
    • School Resources
    • Support Groups
    • Clinical Trials
    • NIH
    • Military Families
    • Other Resources
      • Blogs We Like
  • About Us
  • How You Can Help
  • Donate Now
Facebook: social networking Twitter This site's RSS feed

Tag Archives: crmo awareness

Help Us Beat the Heat of Autoinflammatory Diseases Ice Cream Fundraiser

Posted on July 16, 2015 by Jennifer Tousseau

Looking for a way to participate in Autoinflammatory Awareness Month this August? How about coordinating your own local ice cream fundraiser! This fun and clever idea for raising awareness and donations for Autoinflammatory diseases comes from our own Autoinflammatory Alliance … Continue reading →

Posted in Action & Advocacy | Tagged autoinflammatory nonprofit, Awareness month for CRMO, Awareness month for fever syndromes, Awareness month for pfapa, caps nonprofit, crmo awareness, CRMO nonprofit, Fundraising for candle, Fundraising for caps, Fundraising for crmo, Fundraising for dada, Fundraising for dira, Fundraising for ditra, Fundraising for familial Mediterranean fever, Fundraising for fcas, Fundraising for fmf, Fundraising for hids, Fundraising for majeed, Fundraising for mws, Fundraising for nlrc4, Fundraising for nomid, Fundraising for papa, Fundraising for pfapa, Fundraising for plaid, Fundraising for sapho, Fundraising for Schnitzler, Fundraising for sojia, Fundraising for still’s disease, Fundraising for sweet’s syndrome, Fundraising for traps, periodic fever syndromes nonprofit, pfapa nonprofit
Facebook: social networking Twitter This site's RSS feed
No images found!
Try some other hashtag or username

More Information

  • Action & Advocacy
  • FAQs
  • Finding a Diagnosis
  • How the Autoinflammatory Alliance Helps
  • Living with an Autoinflammatory Disease
  • Medications & Treatments
  • News
  • Patient Stories
  • Research
  • School/Work/Insurance Challenges

Most Popular Posts

  • What is Aphthous Stomatitis?
  • How to Use the Comparison Chart of Systemic Autoinflammatory Diseases
  • What is a Periodic Fever Syndrome?
  • What is the Most Accurate Way to Take a Temperature?
  • Normal Body Temperature and the Periodic Fever Syndromes
Visit Autoinflammatory Alliance/SAID Support's profile on Pinterest.

Recent Posts

  • Multisystem Inflammatory Syndrome (MIS-C), COVID-19, and Autoinflammatory Diseases in Children
  • Autoinflammatory COVID-19 Resources for Information
  • TRAPS Life Without Proper Medication – My Story
  • How Do You Find Normalcy with a Chronically Sick Child? When Does Life With a Periodic Fever Syndrome Become Normal?
  • Hope Lives
  • The Pain of Autoinflammatory Diseases: Children and Adults Tell Us What a Flare Feels Like
  • Autoinflammatory Patients Share How NIH Research Saves Lives
  • NIH Research Funding Benefits Everyone by Improving Health for All!
  • Books to Help Kids Living with Chronic Illness
  • Cryopyrin-associated Periodic Syndrome (CAPS) Treatment Guidelines – Studies and Other Resources

Tag Cloud

why does my child keep getting fevers fever syndrome treatment immunoglobulin D what is autoinflammatory disease NIH studies what is a low grade fever cryopyrin associsted periodic syndromes autoinflammatory pregnancy tympanic temperature high body temperature best thermometer thermometer for fever How to make kineret less painful hyper-igd invisible illness shar pei fever life expectancy national health care agency CAPS treatment national institute of health in bethesda maryland shar pei amyloidosis How to make injections hurt less medication bag caps nonprofit best fever thermometer Systemic Undifferentiated Recurring Fever Syndrome

Main Pages

  • About Us
  • Action & Advocacy
    • Newsletters
  • Autoinflammatory Alliance
    • Disclaimer
    • Editor Bios
    • New Name–Same Mission and Goals
      • What Does Our Logo Symbolize?
    • Our History
    • Privacy Policy
  • Contact Us
  • Diagnostic Tools/Genetic Testing
  • Disease Specific Info
    • CRMO
    • Cryopyrin-Associated Periodic Syndromes (CAPS)
      • CAPS in 2021: Updates & Patient Experiences: Videos & Podcasts
    • Familial Mediterranean Fever
    • Hyper-Igd Syndrome
    • NLRC4-Associated Macrophage Activation Syndrome-Like Illness
    • TRAPS
  • Donate Now
  • How You Can Help
  • Patient Resources
    • Clinical Trials
    • Education
    • Military Families
    • NIH
    • Other Resources
      • Blogs We Like
    • School Resources
    • Support Groups
    • Symptom Logs
    • Tips and Resources for Patients (Adults and Children) on Biological Medications
  • Privacy Policy
  • Videos
  • Where to Start

Amazon Disclaimer

SAIDSupport.org is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com.
Privacy Policy
Medical Disclaimer
Contact Us
© 2013 - 2016 - SAID Support - All rights reserved. No part of this website may be copied or duplicated, in print or online, without written permission. SAID Support is produced and managed by the Autoinflammatory Alliance.
↑