This is Baby Olivia’s Story – The 4th Person in the World with a Newly Discovered Autoinflammatory Disease

The following was written by Jill DiStefano, Olivia’s mom. Olivia was the 4th person diagnosed with NLRC4 macrophage activation-like syndrome (NLRC4-MAS), a type of periodic fever syndrome. This is Olivia’s story and how we came to find out about her … Continue reading

My Son’s Struggles with an Undiagnosed Periodic Fever Syndrome

The following was written by Darcy Coyne, mom to Keegan who has a periodic fever syndrome. Scroll to the bottom to see an update to Keegan’s search for a diagnosis! My son, Keegan, who is 18 years old, has been … Continue reading