This is Baby Olivia’s Story – The 4th Person in the World with a Newly Discovered Autoinflammatory Disease

The following was written by Jill DiStefano, Olivia’s mom. Olivia was the 4th person diagnosed with NLRC4 macrophage activation-like syndrome (NLRC4-MAS), a type of periodic fever syndrome. This is Olivia’s story and how we came to find out about her … Continue reading

School 504 Plans for Kids with Periodic Fever Syndromes

Here you will find general information about 504 plans and specific information and tips for enacting a 504 plan for children with autoinflammatory diseases, often referred to as periodic fever syndromes. Click here to download a PDF of this post. … Continue reading